Of all the things I’m bad at, breathing is at the top of the list!

Asthma. I have had it pretty well under control… until this week. I’ve been suffering the granddaddy of all asthma attacks all week and now also have oral thrush. Really?!! Because of course I do. I finally gave in and went to urgent care today because my peak flow was hovering around 150.  My personal best for all you knowing asthma sufferers is between 480 and 500. For those of you not in the know, we people who suck at breathing have to stay on top of this and have an action plan in place for what to do as the numbers drop that goes something like this and In this order:  emergency inhalers, breathing treatments, urgent care, emergency room then ambulance. To put this in perspective for you, I was floating between needing the urgent care and emergency room and not quite yet an ambulance. And because I’m stubborn, had I not let my husband talk me into urgent care there was going to be an ambulance in my near future. Because I’m dumb and stubborn.

Actually that’s not completely true. Those of us who suck at breathing always second guess ourselves. Is this attack really that severe? Am I going to look stupid going to the ER or calling an ambulance? Am I making a big deal out of nothing and if I just relax it’ll go away? We’ve all been there. We also know how exhausting it is not being able to breathe. I explained it to my husband like this: I feel like I have an elephant standing on my chest and I can only manage short breaths and those short breaths hurt and are laborious which exhaust me. It’s like I’m slowly suffocating and can’t get enough air. And then I panic which makes it worse. And asthma is serious folks. You can DIE from it.  And yet we tell ourselves not us. Mine isn’t THAT bad. This attack isn’t THAT bad. But let’s face it. At this point we are oxygen deprived and shouldn’t be allowed to make any decisions on our own. Right? That’s why it’s important to share with a trusted friend or loved one the warning signs and your action plan so they make sure you get the help you need and quickly.

I am now back home after spending the morning at Urgent Care. The doctor asked if I’m a nurse because I’m so knowledgeable about my illness and health and what I need to feel better. I told him I’m well-versed and have found it makes Dr. Visits more efficient by me staying organized and up-to-date on my health. He agreed and said it was making treating me easier and faster. He was able to get me a breathing treatment quickly with the right medicine and dosage that would work for me as well as the barrage of inhalers and drugs I’ll need for the next week or so. Including prednisone. Ugh! On top of asthma I also have chronic ABPA (allergic bronchopulmonary aspergillosis) so my lungs are damaged. While I was weaned of prednisone and have been in remission I know there will be times when I will need a prednisone burst to get over the hump. And as much as I hate prednisone, I’m quite knowledgeable  in how to survive it. I picked up a very strong probiotic (VSL3), stocked up on kombucha and licorice tea and am steeping astragalus root in my tea. I will also make sure I give my body plenty of rest the next few days. And, most important, to take my prednisone in the morning so it does NOT affect my sleep. All things I’ve learned after being on prednisone for 9 years (been weaned off since January). I will also behave and do breathing treatments every 3-4 hours for the next few days.

And I rushed home to tell you all of this because what I really wanted to share with you is, one, the importance of listening to your body and, two, the importance of understanding your health and the care you need and to be prepared for Dr visits- Keep a list of your current meds, and any allergies and what has and has not worked in the past. It is important you take an active role in your care. Ask questions. Make sure you understand all instructions and that you have everything you need before you leave. If your Dr forgot to prescribe something. Say something! Honest, it’s ok! It’s totally ok! Because in the end, your health is your responsibility.

And now that the shakes have stopped from my treatment I’m going to take a nap.

May the breathing gods ever be in your favor!

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