Tag Archive | ABPA

To the Finish Line and Beyond

My doctor suggested I read a book called “The Wahls Protocol” and I’m already fascinated and I’m just on chapter one! As most who know me know, I have Rheumatoid Arthritis and something called ABPA. I am lucky in that I’ve been able to manage both through what I eat – a strict paleo diet and after a very difficult year am now off all meds. A miracle? Sure. But also a lot of hard work. A passage that spoke to me from her book: “You are made of cells…Cells come in different sizes and shapes and they all do different things, but they are, essentially, the building blocks that make up our bodies… They need certain nutrients in order to do the work of keeping you alive and healthy. Without those nutrients, the cells begin to malfunction, even die. Where do those nutrients come from? They come from the food you eat, nowhere else… Your genetics may determine WHAT goes wrong but when the cells aren’t getting what they need, the body doesn’t work right and something (usually many something’s) will go wrong somewhere.”

“People often wonder whether health is mostly a matter of genetics. Do your cells work well or poorly depending on your DNA? If it were up to your genes, then what you eat and how you live wouldn’t matter very much. However, we know this isn’t the case.”

Wow! Just wow! I’m living proof of this. I went from being very ill two years ago to sitting in the car traveling to run a half marathon in three days. I was once so ill that, at the rate I was declining and had someone very dear to me not stepped in, I would not be here today. I’m certain of it. I was then referred to a Functional Medicine doctor who saved my life through diet and supplements. Of this I am sure. I went from being bedridden and weak with such bad thrush I couldn’t eat. The oral thrush then moved into my esophagus; a testament to how very sick I was. The very medications I was being given to cure me were slowly poisoning me.

I’ve written about the struggle to be weaned off prednisone. It was hell. There were days I didn’t want to continue but I knew deep down I had no choice so each taper I fought through the extreme pain -my body hurt to the touch, every joint hurt terribly. The mood swings were awful, I couldn’t sleep or eat. By the time things settled down, it was time for the next taper. And so it went for a year until I was finally free of all meds and, to this day almost eight months later, still am.

I’ve been training for this run for months. I’ve trained through minor health setbacks, including a cracked rib and a separated shoulder. I’ve trained through sinus infections and asthma attacks. And through it all I’ve managed to push through and move forward, one mile at a time.

This is not my first half marathon. My first was four years ago – right before all of this began. But this one is most important to me. Because, you see, I’m me again. I’m strong and healthy. I’m a little battle worn but isn’t anyone who has fought such a battle and won? I’m proud of how very far I’ve come in such a relatively short amount of time. I am a fighter. And I believe with all my heart and soul where I am is because of how and what I eat. And this is why I write this blog. Why I passionately share with anyone who will listen.

To come to terms with what I’ve been through I had to believe there was a purpose to all of this. And my purpose is to pay it forward. To be that person to someone in need. To share what I’ve learned and perhaps make it easier for others. So that even if just one person knows they are not alone and can do this, then all of this will not have been in vain.

And as I cross that finish line on Sunday, I know there will be tears but they will be tears of joy. Of triumph. I’m not just running this race for me but for the many who have been there with and for me the last two years. Those of you reading this know who you are. The ones who prayed with me, cried with me, made me laugh, helped me with my workload, just simply loved me… you will all be with me on Sunday.

I am ever grateful to you all.

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I’ve Lost the Will to Live…

I’ve lost the will to live… that’s what I told myself at mile 7 of my 9 mile run last week. I was so wiped out, I pondered Ubering home but then my inner stubbornness kicked in and I finished my run.  Today was mile 10 day. I felt great the ENTIRE run. No willing myself to die this time. Why the huge difference, I asked myself.  The difference is routine,  consistency and discipline. I allowed myself to fall out of routine and THAT was the game changer.

When training for a big race or just eating Paleo in general, routine and discipline is key.  It’s important you eat right – natural, healthy food that will fuel your body. You must stay hydrated. And I’m not talking the night before your big workout. Daily Hydration helps your body function properly, it flushes the toxins out of your body, it also gives you good skin. For those of you looking for the fountain of youth or who ask why I have such a nice complextion, I’ll tell ya that fountain of youth is no further than the water on your refrigerator door, faucet, etc. Limit your alcohol consumption or cut it completely. I promise you will survive; a glass of sparkling water with lime is just as refreshing. Lastly, make sure you are getting enough sleep and also allow your body time to rest. Rest days are built into a training program for a reason. And if you are injured, for Pete’s sake, allow your body to heal (yes I hear your groans friends and family…). I don’t always follow this. I’m recovering from a cracked rib and separated shoulder and am currently only allowed to walk/run until I’m fully rehabbed. And you know what? My pace has decreased because I’m allowing my body to heal!! Allow your body to heal. It will thank you.

Every run/workout is different. You will have good days and bad ones. But you can increase your odds of good workouts by taking care of your body. After all, it’s the only one you’ve got.

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“It’s the climb”

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This morning, “It’s the Climb” by Miley Cyrus came to mind because I’m in the middle of a blip. Oral thrush and fungul sinusitis. More prednisone and an antifungal. My diagnosis yesterday. Ugh. I had a bit of pity party because how much more? I had to step a bit out of myself to find the answer to this one. The bottom line is I suffer from chronic, autoimmune disease. It’s always going to be  there and my normal will never be just normal. And the truth here is that although I’m currently sick, I’m much better than I was this time last year and that I’m going to have blips along the way. What counts is how I handle those blips that determines the success of what I’m doing.   Some days I handle it with grace and other not so much.  But I’m human, right? No matter the day, the most important advice I can give you is to be kind to yourself.  I can’t control this illness anymore than I can control the weather.  However, I CAN control the severity by how I treat my body. By what I put in and on my body.  By staying positive even when I want to curl up into a ball and cry. By taking an active role in my health, I am beating this and I will continue to beat this because what other choice do I have, really.

So, today I thought I would share some simple tips with you which make my life a bit easier and all of this less daunting.

  • Get out of bed.  No really.  That’s it.  I have RA. Things creak and hurt.  And right now I don’t feel so hot.  However, get out of that bed.  Move.  The more you move, the better you are going to feel.  And, I’m going to say it, the better your “system” will work, if you get my drift. And gut health is key here (more on that another day).  Those endorphins will also make you feel better.  REALLY! Also, getting dressed and made up can make you feel better about yourself.  Sometimes it really is all about those little things.
  • PLAN AHEAD!  Eating paleo is not something you can’t just do on the fly.  It isn’t.  But, it can be with a little prep work.  When you get home from the store, dice those veggies, spiralize the squash, prep the sauces. Trust me, you will be glad you did during the week.  Because now that you’ve prepped, you have paleo fast food at your fingertips!
  • Meal prep – This doesn’t have to be fancy OR difficult.  In fact, some times dinner is something as simple as a fried egg over leftovers.  I’ve found that we no longer waste food.  Tonight’s dinner could become tomorrow’s breakfast or lunch or repurposed for dinner.  But, here’s a few hacks for you:
    • Riced cauliflower – You can buy it ALREADY done.  Yup.  Just open the bag and you are set.  However, to save money, I rice up a few batches and store in my freezer. That way I always have cauli-rice on stand-by.  You can also mix this up by ricing some sweet potato or carrots as well, just for variety.
    • Spiralized noodles – You can also buy these already done.  I like to keep in the fridge for whenever the mood strikes but generally I spiralize ahead of time and store in the fridge.
    • Cook up you sweet potatoes and spaghetti squash ahead of time in the microwave or Instant Pot. Still just as good and way quicker.
    • Spiralize veggies and then roast them in the oven.  Once cooked, throw into a bowl and add a beaten egg or two and then cook up in your waffle iron.  YUM!
    • Do you have veggies in your fridge that are looking sad.  You know what I’m talking about…  That little bit of cauliflower, baby carrots, broccoli and asparagus left over in the back of the bin.  Take it all, toss with a little olive oil and roast for 15 mins at 425 degrees.
  • Travel – Never EVER leave the house without food in your purse, bag, whatever. Let me repeat that. Never EVER leave the house without food in your purse, bag, whatever.  I always have a compliant snack in my purse and I always carry protein.  And I never leave home without water.  If I’m traveling long distances, I pack more snacks. Never get caught with nothing to eat.  Do you know what happens when you do that?  You eat crap and then you FEEL like crap.  You can go to Danielle Walker’s Against All Grain Blog for lots of tips on how to eat while traveling.  For me, I like to pack nuts, apples, lettuce wraps, hard boiled eggs and I always have one of those little tuna packets with me.  I also like to make my own cereal bars (and these are super easy to make and taste better than that awful store-bought crap.  http://againstallgrain.com/2012/08/11/glutenfree-cereal-breakfast-bars/  
  • Tools – Have the right tools in your kitchen.  If I was going to be stranded on a deserted island and could only bring one kitchen tool besides a knife and a fork (with electricity of course and an abundance of food – hey this is my fantasy…) I would bring my Instant Pot (although my KitchenAid was a close second.  Those attachments and the machine count as one, right?).  How I went so long without an instant pot can only be summed up that I am a big, fat chicken who was afraid she’d blow her house up.  Hasn’t happened yet.  What has happened is I make fantastic meals in a fraction of the time. Now I have more time for fantasizing about that deserted island and grocery shopping on line.
  • Research – You can’t do this alone.  Believe me, I tried and failed.  Visit the different blogs and web pages out there.  My favorites are Against All Grain, Whole30, Nom Nom Paleo and Physicalkitchness.  You can find their web pages or look them up via social media.  I have found a plethora of support and it makes me not feel so alone in this.
  • Shopping – Eating paleo can get expensive but there are ways to save (both time and money).  Our local grocery store will do the shopping for you and bring it to your car. I love this.  While I’m prepping my meal plan for the week, I shop online and pick the groceries up two hours later. A shame they don’t unload them for me, but that’s what the Hubs is for.  Also take advantage of sites like Thrive Market.  The discounts I get by shopping at their site more than make up the annual fee.  And they ship fast.  Whole Foods –  did  you know some stores deliver?  OMG!  And right to my office door. Then there is Costco for things I buy in bulk like coconut oil, ghee, nuts, nut flours, etc.  I also shop Amazon for deals as well.  Sometimes you even get same day delivery.  Wow. How lazy am I? Although I prefer to say I’m efficient and making the best use of my time. I round my shopping out with local farmers markets when I can get to them.  I really need to be better about that.
  • Keep your pantry/fridge stocked!  Things I ALWAYS have on hand: coconut milk, coconut oil, ghee, bacon, nuts, nut flours, almond butter, sunbutter, cashew butter, bone broth (more on that in a minute), avocado oil mayo, honey, arrowroot powder, spices, chomp sticks, compliant apple sausage, chicken, coconut aminos, apple cider vinegar, Nutpods creamer, fresh fruit and veggies, tuna, eggs and almond milk.  There’s more and maybe my next post will be a lists of all things needed.
  • Broth -Make your own.  It’s super easy.  Especially with an instant pot.  I’ve been making Rebecca Katz’s Magic Mineral Broth.  I make giant batches of it and then store some in the freezer.  It is the base of all my soups, etc.  And when I’m not feeling well I like to sip on it.  If you are going to buy broth, make sure it’s bone broth.  Much better for you.
  • Go see an Integrative Specialist.  Get tested for food allergies/intolerances.  Or follow the Whole30 plan. It’s not easy but 30 days is doable and isn’t your health worth it? You will thank Melissa later.
  • If changing your whole routine is too large a task at the moment and it seems overwhelming to you.  Then make one small change at a time.  However, if you really want to get good results, the Whole30 is a great tool to follow.

I could go on and on and I’m sure you feel like I have.  This is just something I’m passionate about and believe in. By taking an active role in your health, you can change the outcome.  Sure there will be days that are more difficult than others.  There will be some blips along the way but it’s all part of the climb. YOUR climb.

It’s the Climb – Miley Cyrus

I can almost see it
That dream I am dreaming
But there’s a voice inside my head saying
“You’ll never reach it”

Every step I’m taking
Every move I make feels
Lost with no direction
My faith is shaking

But I gotta keep trying
Gotta keep my head held high

There’s always gonna be another mountain
I’m always gonna wanna make it move
Always gonna be a uphill battle
Sometimes I’m gonna have to lose

Ain’t about how fast I get there
Ain’t about what’s waiting on the other side
It’s the climb

The struggles I’m facing
The chances I’m taking
Sometimes might knock me down
But no, I’m not breaking

I may not know it
But these are the moments that
I’m gonna remember most, yeah
Just gotta keep going

And I, I got to be strong
Just keep pushing on

‘Cause there’s always gonna be another mountain
I’m always gonna wanna make it move
Always gonna be a uphill battle
Sometimes I’m gonna have to lose

Ain’t about how fast I get there
Ain’t about what’s waiting on the other side
It’s the climb, yeah!

There’s always gonna be another mountain
I’m always gonna wanna make it move
Always gonna be an uphill battle
Somebody’s gonna have to lose

Ain’t about how fast I get there
Ain’t about what’s waiting on the other side
It’s the climb, yeah!

Keep on moving, keep climbing
Keep the faith, baby
It’s all about, it’s all about the climb
Keep the faith, keep your faith, whoa

The Prednizone

Nope, not a typo. I’ve entered back into The Prednizone. Third day in and I’m exhausted. I haven’t slept in two days, I’m cranky and just so darn tired my eyes hurt. But I have to power through a few more days of this hell . Why did I give in and let them prescribe this to me? Well, it’s keeping me out of the hospital. That’s why. There will be times I must have a prednisone burst because of my asthma and ABPA, and this is just one of those times.

So, because I’m so wiped out from this trying to breathe thing, I’m making very simple meals, one that flows into another. Quick and not energy zapping. I bought cauliflower and sweet potato rice this week and have used it for breakfasts and dinners: under fried eggs, under a Hawaiian chicken patty and added to other leftovers. A little pop of color and it tastes great. We don’t waste food here so one meal is just repurposed into the next. Even breakfast can become a sweet potato and some leftover pulled pork with avocado. It’s using what you have and yet being creative. Last night, I took a sweet potato and then covered it with leftovers consisting of broccoli,  riced cauliflower and sweet potato, ham and apple sausage and then drizzled my dairy free ranch over the top; a simple meal that was pretty to look at and yet quick and filling.

Eating healthy doesn’t have to be difficult. I do all my prep work on Sundays so the rest of the week is a breeze. Heat and eat. And by repurposing leftovers, you are keeping things interesting and also not wasting food.  The key is to prep things on Sunday which can be worked together during the week.

My ranch dressing recipe:

1/4 cup avocado mayo

about three tablespoons of coconut milk or enough to get a ranch dressing consistency

1/4 tsp celery salt

1/4 tsp onion powder

1/2 -1 tsp dried dill (I like lots of dill)

small pinch of salt and pepper

mix until the consistency is smooth and this will last a week in your fridge.

Another tip is to take that small amount of   Dijon mustard you are about to throw away and add a little champagne vinegar and honey. Shake well and you have a nice vinegrette. Again, no waste.

Once you get the hang of repurposing meals, it gets easier. Honest. And if I can do it, so can you. So, what are you batch cooking this week and how will you turn those varied leftovers into meals?

Signing out from the Prednizone. Maybe I’ll get a nap today. Oh, who am I kidding?

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